Welcome!
The Pennsylvania Idiopathic Pulmonary Fibrosis State Registry is a collaborative effort of five medical centers in the Commonwealth of Pennsylvania aiming to increase awareness of IPF, provide compassionate care for patients and their families, and to improve access to care and research to patients with IPF and their families.
Throughout this site you will be able to find an extensive range of information and opportunities in or around your community such as:
- Registration to the PA-IPF
- A Medical Center Near You
- Specialized Physicians
- Support Groups for Patients and Families
- PA IPF Newsletter
- Frequently Asked Questions (FAQ) About IPF
- Information for Physicians (recent highlighted literature, clinical studies)
- Call Our Hotline 1-866-922-4IPF
We are saddened to announce the passing of Daniel Beren on December 14, 2014.Daniel Beren was instrumental in the creation of the Daniel and Joan Beren PA-IPF Registry in 2006 with the purpose of bringing together five academic centers in the Commonwealth of Pennsylvania to increase awareness of Idiopathic Pulmonary Fibrosis (IPF). This registry has provided awareness of IPF to patients and providers throughout Pennsylvania and access to these centers of excellence for IPF care. |
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