Hershey Medical Center Hershey Medical Center Geisinger Health System Geisinger Health System Univ of Penn Univ of Penn Temple University Temple University University of Pittsburgh UPMC Simmons Center
PA-IPF Registry home  

The Daniel and Joan Beren
Pennsylvania Idiopathic Pulmonary Fibrosis
State Registry

A project of the University of Pittsburgh, University of Pennsylvania, Penn State Milton S. Hershey Medical Center, Temple University, Geisinger Medical System

PA-IPF Hotline  1-866-922-4IPF (4473)


PARTICIPATING CENTERS

Geisinger Health System

Penn State Hershey Medical Ctr

University of Pennsylvania

University of Pittsburgh

Temple University

 

To speak with a PA-IPF Coordinator, please call the PA-IPF Hotline at

1-866-922-4IPF (4473)

Help and Resources Outside of Our Service Area

Medical

American Thoracic Society | http://www.thoracic.org/

The American Thoracic Society, founded in 1905, is an independently incorporated, international, educational and scientific society which focuses on respiratory and critical care medicine.


Coalition for Idiopathic Pulmonary Fibrosis | http://www.coalitionforpf.org/

The Coalition for Pulmonary Fibrosis (CPF) is a 501 (c) (3) nonprofit organization, founded in 2001 to further education, patient support and research efforts for pulmonary fibrosis, specifically idiopathic pulmonary fibrosis (IPF).


National Institutes of Health | http://www.nig.gov/

The National Institutes of Health is the steward of medical and behavioral research for the Nation. It is an Agency under the U.S. Department of Health and Human Services.


Pulmonary Fibrosis Foundation | http://www.pulmonaryfibrosis.org/

The Pulmonary Fibrosis Foundation is dedicated to finding a cure for and raising awareness of pulmonary fibrosis, an often fatal lung disease. The Foundation is devoted to improving the quality of life for those afflicted with this illness.


Travel

Breathin' Easy: A Guide For Travelers with Pulmonary Disabilities | http://www.oxygen4travel.com/

Information on more than 2,500 locations to refill your oxygen tanks, in more than 1,600 cities in all 50 states. Dependence on oxygen does not have to keep you at home. Many resources are available to help you "hit the road." This site summarizes most of what you will need to know about traveling with oxygen.


Accessible Journeys | http://www.accessiblejourneys.com/

Since 1985, Accessible Journeys has been designing accessible holidays and escorting groups on accessible vacations exclusively for slow walkers, wheelchair travelers, their families, and friends.


Can Be Done | http://www.canbedone.co.uk/

The philosophy of Can Be Done is that those less agile or with disabilities should have the same facilities available to them as those who are able-bodied, if at all possible.


Home Care Equipment and Services

Mallinckrodt Inc. | http://www.mallinckrodt.com/respiratory/resp/index.html

The respiratory group develops and markets an extensive line of products and services that help facilitate and monitor anesthesia, diagnose and treat respiratory disease and provide life support for the critically ill patient, from the hospital to the home.