Hershey Medical Center Hershey Medical Center Geisinger Health System Geisinger Health System Univ of Penn Univ of Penn Temple University Temple University University of Pittsburgh UPMC Simmons Center
PA-IPF Registry home  

The Daniel and Joan Beren
Pennsylvania Idiopathic Pulmonary Fibrosis
State Registry

A project of the University of Pittsburgh, University of Pennsylvania, Penn State Milton S. Hershey Medical Center, Temple University, Geisinger Medical System

PA-IPF Hotline  1-866-922-4IPF (4473)


Risk factors for IPF
Diagnostic test for IPF
I've been diagnosed with IPF, now what?
What if I need oxygen?
Exercise and IPF
Find a support group
How will IPF affect my diet?
I'm afraid of death, what can I do?
Will my children get IPF?

About IPF

  healthy lungs  

Pulmonary Fibrosis is an insidious disease that attacks the air sacs of the lung and the result is that scar tissue forms which make it very difficult to breathe. When the cause is unknown the disease is called Idiopathic Pulmonary Fibrosis (IPF). This disease can be handled for a period of time; in most cases the disease is fatal.

Being diagnosed with idiopathic pulmonary fibrosis (IPF) will affect your life in many ways. The PA-IPF investigators are attentive to the physical progression of the disease and offering you to receive new available treatments. It is also important to discuss its other effects. Based upon interviews with current patients at the Simmons Center site, we've put together the following frequently asked questions. It is our hope that you will help us add to this section, passing on the lessons you've learned to others.

I've been diagnosed with IPF. Now what do I do?
What do I do if I need oxygen therapy?
Can I exercise with IPF?
How will IPF affect my diet?
I am afraid of death. What can I do?