Pulmonary Fibrosis is an insidious disease that attacks the air sacs of
the lung and the result is that scar tissue forms which make it very
difficult to breathe. When the cause is unknown the disease is called
Idiopathic Pulmonary Fibrosis (IPF). This disease can be handled for a
period of time; in most cases the disease is fatal.
Being diagnosed with idiopathic pulmonary fibrosis (IPF) will affect your life in
many ways. The PA-IPF investigators are attentive to the physical progression of
the disease and offering you to receive new available treatments. It is also important
to discuss its other effects. Based upon interviews with current patients at the
Simmons Center site, we've put together the following frequently asked questions.
It is our hope that you will help us add to this section, passing on the lessons
you've learned to others.