The Daniel and Joan Beren Pennsylvania Idiopathic Pulmonary Fibrosis State Registry
 

The Daniel and Joan Beren Pennsylvania Idiopathic Pulmonary Fibrosis State Registry
Talk to a PA-IPF Coordinator by calling the PA-IPF Hotline  1-866-922-4IPF
A project of the University of Pittsburgh, University of Pennsylvania, Pennsylvania State Miton S. Hershey Medical Center, Temple University, Geisinger Medical System
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ABOUT IPF
About IPF - FAQ
Risk Factors for IPF
Diagnostic Tests for IPF
I've been diagnosed with IPF
  Now what?
What If I Need Oxygen?
Exercise and IPF
How Will IPF Affect My Diet?
I'm Afraid of death
  What can I do?
Will My Children Get IPF?
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About IPF
Pulmonary Fibrosis is an insidious disease that attacks the air sacs of the lung and the result is that scar tissue forms which make it very difficult to breathe. When the cause is unknown the disease is called Idiopathic Pulmonary Fibrosis (IPF). This disease can be handled for a period of time; in most cases the disease is fatal.

Being diagnosed with idiopathic pulmonary fibrosis (IPF) will affect your life in many ways. The PA-IPF investigators are attentive to the physical progression of the disease and offering you to receive new available treatments. It is also important to discuss its other effects. Based upon interviews with current patients at the Simmons Center site, we've put together the following frequently asked questions. It is our hope that you will help us add to this section, passing on the lessons you've learned to others.

I've been diagnosed with IPF. Now what do I do???
What do I do if I need oxygen therapy?
Can I exercise with IPF?
How will IPF affect my diet?
I am afraid of death. What can I do?

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